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Meet The Sailors With MS

Getting afloat makes a difference to people living with MS

Independence and confidence

The year before he was diagnosed with Multiple Sclerosis in 2010, Nick Jarvis, bought a wheelchair on eBay. The pain in his legs was so bad he couldn鈥檛 walk properly. The wheelchair gave him a bit more freedom, some of his life back.

Seven years later he independently walked off a yacht in Turkey with one crutch. It was, he insists, impossible. And yet it happened.

So how does sailing promote independence and confidence in people with MS?

鈥淔or me MS dimmed the lights,鈥 explains Robert Munns, founder of , a charity that offers people from all over the world the opportunity to sail alongside others with MS. 鈥淢S affects your life on a daily basis; it takes your identity away, you feel isolated and fear the unknown and loss of possibilities.

鈥淔or seven years after my diagnosis I鈥檇 not been committing to life. Everything felt pointless; I didn鈥檛 know how I was going to feel tomorrow let alone in six months. By making them realise what鈥檚 possible, sailing gives people with MS the opportunity to achieve their own form of greatness. The lights go back on.鈥

Taking back control

The MS Society describes MS as 鈥渁 condition that affects your brain and spinal cord. The coating that protects your nerves (myelin) is damaged. This causes a range of symptoms like blurred vision and problems with how we move think and feel.鈥 Because of the range of symptoms, MS is different for everyone.

Robert grew up on the water on the Norfolk Broads and was working as a marina manager in Brighton, having forged a career in cruising, when he was diagnosed at 40. But it was only after a chance meeting with the charity, Sailing Sclerosis, led to him sailing across the Pacific he was reminded of sailing鈥檚 restorative powers.

On his return to England, he committed his life to, 鈥済iving people with MS a taste of what I had.鈥 Nick Jarvis is one of those people.

Diagnosed at 35 whilst working as a basketball development officer in 2010, Nick had never sailed when, through his involvement in the MS Society鈥檚 Norwich and District Branch, he heard about the chance to go to Turkey with Oceans of Hope. That was in late 2015. The following May he had his life changing on-the-water experience. He鈥檚 never looked back.

鈥淚 spent the first three days on my knees getting around,鈥 he recalls.聽鈥淏ut because of the movement of the boat, the fact I was using my core muscles and it was warm I started feeling stronger. My legs just love the heat! On day four I pulled myself up, holding on to the back of the boat and just went with the waves.

鈥淏ut the 鈥榯hat鈥檚 impossible鈥 moment came when one of the crew said she saw me walk from the top of the galley ladder to the helm. I hadn鈥檛 even realised I鈥檇 done it. By Saturday I walked off that boat with one crutch, and when I walked into my physio鈥檚 office a couple of days later she was in complete shock.

I learned there鈥檚 nothing you can鈥檛 do on a boat, it鈥檚 a level playing field for everyone. I went from sleeping every day being the norm to re-finding the confidence I鈥檇 lost when I was diagnosed to get out and meet other people again.

- Nick

Such was the impact that Nick wanted to learn more when he returned home, so he got involved with the Nancy Oldfield Trust, the Norwich-based Sailability site. The Trust reconfigured an RS 2000 for him and he sailed regularly throughout 2016 and 2017 before family life started to limit his sailing time.

Nick still uses a wheelchair on bad days and especially in the cold winter months. He returned from his fourth Oceans of Hope trip in October, and has never stopped championing the benefits of sailing to people with MS.

Earlier this year, Nick and his partner, who also has the condition, organised for a group of 25 from an MS support group they run to go sailing for a day at the Nancy Oldfield Trust. Three days later he received a message from one of the participants, who lives in Leeds, to say she had gone home and joined her local club!

This isn鈥檛 uncommon Robert admits: 鈥淲e鈥檝e probably got over 400 examples of people who have come back from trips and got involved with local and national Sailability groups, including people who are now instructors and teach others to sail locally.

鈥淪ailing enables people to learn new skills, challenge themselves in an environment they鈥檙e not used to and take it further if they want to. It helps improve the health of your brain and is about getting rid of the fuse that dims the lights.鈥

Confidence Mum can see

After her diagnosis in 2016, Trish Smith absolutely needed the lights turning back on.

With her MS affecting her brain more than body, a combination of extreme fatigue and some very stressful personal events saw Trish endure a prolonged period of depression. Seeing an introduction sailing weekend at Bewl Water advertised on her local Hampshire MS Support Facebook group last summer led to a change in her whole attitude to her condition in one weekend.

I鈥檝e never been a confident person but something made me do it, that weekend taught me I鈥檓 not limited in what I can do and I can still experience things like sailing, whatever direction my MS goes in.

- Trish

Trish joined Oceans of Hope in Croatia weeks later and proved to be a natural on the helm. Her confidence blossomed to the extent her eyes light up when she talks about her passion for sailing. On her most recent cruise in Turkey she sent a photo of herself on the helm to her mum. Mum鈥檚 response was defining.

鈥淪he said she had not seen me look so happy for such a long time. Mums know everything so when she says that I鈥檒l take it.鈥

Sailing switched Trish鈥檚 light on. She won鈥檛 be the last person with MS whose life changes course on the water.

Dinghies travelling through the water

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